Nancy Hanna Rogowski created the Ehlers-Danlos National Foundation (EDNF) in 1985. The primary goal of EDNF is to provide emotional support and updated information to those affected by Ehlers-Danlos syndrome and to their family members. In addition, EDNF serves as a vital information link to and from the medical community. It is our desire to inspire and support research in the field of connective tissue disorders-specifically Ehlers-Danlos syndrome.
Ehlers-Danlos National Foundation
3200 Wilshire Blvd Suite 1601, South Tower
McLean VA 22102
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A federal government website managed by the Office on Women's Health in the Office of the Assistant Secretary for Health at the U.S. Department of Health and Human Services.
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