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Dystrophic Epidermolysis Bullosa Research Association of America, Inc.
Mission Statement
DebRA was organized more than 20 years ago to help patients and their families. Its activities include: Promoting and supporting extensive scientific research to achieve a cure for EB; Assisting, supporting and guiding families in the physical and emotional treatment of individuals with EB. DebRA’s programs include the daily services of an experienced Nurse/Educator, a national physician referral service, a network of regional support groups and an information filled website; Representing families and patients to the public and government institutions.
Contact Information
Dystrophic Epidermolysis Bullosa Research Association of America, Inc.
16 East 41st Street, 3rd Floor
New York NY 10017
Phone: 212-868-1573
Toll-free Phone: 866-332-7276
Fax: 212-513-4099
Website: http://debra.org/
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