The VHL Family Alliance provides information for families and physicians about this disorder, and local self-help support groups for families affected with VHL.
VHL Family Alliance
2001 Beacon St Suite 208
Boston MA 02135-7787
Toll-free Phone: 800-767-4845
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A federal government website managed by the Office on Women's Health in the Office of the Assistant Secretary for Health at the U.S. Department of Health and Human Services.
200 Independence Avenue, S.W. • Washington, DC 20201