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Cornelia de Lange Syndrome Foundation

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Mission Statement

The Cornelia de Lange Syndrome Foundation is a family support organization which exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lifetime.

Contact Information

Cornelia de Lange Syndrome Foundation
302 West Main Street. #100
Avon CT 06001

Phone: 860-676-8166
Phone: 860-676-8255
Toll-free Phone: (800) 223-8355 En/Sp
Toll-free Phone: 800-753-2357
Fax: 860-676-8337
Website: http://www.cdlsusa.org/

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womenshealth.gov
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